Thoughts of past illnesses

Not feeling the best at work health wise and coming down with some sort of bug did give me reminders of what my health used to be when I was younger. Everyone does see a healthy young man now, but that was never the case in my early years. The fuzzy headachy feeling was one way that gave me a big reminder that I had not felt that way in a long time. I will write a more detailed blog sometime about the health journey.

As a kid I was actually in and out of hospital pretty often through having migraines and getting sick from swimming in pools. I would within a couple of hours decline and end up with something like Pneumonia. It was never fun being in hospital and on the drip nearly every time I entered. The hospital staff used to know me really well and my lungs were never the best either as they would fill up with phlegm. In some way it was similar to Cystic fibrosis where the lungs fill up with fluid, but is mainly because of the Immotile Cilia Syndrome otherwise known as Kartagener Syndrome. There were many occasions where I would suffer from Bronchitis which was all part and parcel of ending up in hospital. The best way to get that out was physio that was really to beat all the phlegm loose by belting both sides of my chest. After a while you would become very sore and annoyed, but it was one way to get the stuff out. I was very adept in trying to hide the rattle of crap that was on my lungs like cough into a pillow to muffle the sound, but family would always know. Summer was actually the worse time for me as I would always end up in hospital for some reason and was one of the reasons when we were first living in Cairns that we were told by the doctor up that way it was best for my health to move south.

I was at one stage on many different types of drugs to keep me healthy as my health kept declining. I could at one point swallow four tablets at the same time. I really did have distaste for taking drugs that were trying to help me and did get into trouble for not taking them when caught especially when they would go out the caravan window. It had been suggested that I needed drugs to help with anxiety issues I did have as a kid, but mum did put her foot down by saying no as I was already on enough drugs. It wasn’t just asthma medication or the nebuliser that I used to be on for twice a day as there were others like Keflex. One I do remember that I didn’t like was something that was spread over my meals, although I cannot remember what it was. Today I am very happy to be on the seratide inhaler.

The interesting part is they never found out what were causing the migraines and even changing my diet did not work. For a period I was getting migraines for nearly everyday within a six month period. At one stage each time I went to Brisbane I would always come home with a headache. There was a theory that my eyelids had no muscles so it was my forehead muscles doing all the work, but I don’t think that was put to the test. I did learn recently that it was myself that stopped the search for many questions and I think it was around the time we were looking into the smell and taste. I could be wrong, but pretty sure it was around the time I had a nerve conduction test and sleep deprived EEG. I was falling asleep during the nerve test and each time I would drift off I would get a zap. I have had other uncomfortable tests from lumbar puncture aka spinal tap to having a small steel wool toilet brush device placed up my nose to test for Fragile X I think unless it was to do with immotile Cilia Syndrome. I cant quite remember.

The past is something that tends to become murky with time and I was likely told I wouldn’t be able to do many things. My doctor is constantly surprised when I tell her I work in the cold within the supermarket as technically I should not really be doing that. I think in my life I have proven many doctors to be wrong. I am glad that I have not been that sick for many years and hope to keep it that way. I have wondered if it is because I have grown older that my body is able to cope with the changes.

About – taken from Wikipedia
Primary ciliary dyskinesia (PCD), also immotile ciliary syndrome or Kartagener syndrome, is a rare, ciliopathic, autosomal recessive genetic disorder that causes defects in the action of cilia lining the respiratory tract (lower and upper, sinuses, Eustachian tube, middle ear) and fallopian tube, as well as in the flagella of sperm cells.
Respiratory epithelial motile cilia, which resemble microscopic “hairs” (although structurally and biologically unrelated to hair), are complex organelles that beat synchronously in the respiratory tract, moving mucus toward the throat. Normally, cilia beat 7 to 22 times per second, and any impairment can result in poor mucociliary clearance, with subsequent upper and lower respiratory infection. Cilia also are involved in other biological processes (such as nitric oxide production), which are currently the subject of dozens of research efforts. As the functions of cilia become better understood, the understanding of PCD should be expected to advance.
Bronchitis is inflammation of the bronchi (large and medium-sized airways) of the lungs. Symptoms include coughing up mucus, wheezing, shortness of breath, and chest discomfort. Bronchitis is divided into two types: acute and chronic. Acute bronchitis is also known as a chest cold.
Acute bronchitis usually has a cough that lasts around three weeks. In more than 90% of cases the cause is a viral infection. These viruses may be spread through the air when people cough or by direct contact. Risk factors include exposure to tobacco smoke, dust, and other air pollution. A small number of cases are due to high levels of air pollution or bacteria such as Mycoplasma pneumoniae or Bordetella pertussis. Treatment of acute bronchitis typically involves rest, paracetamol (acetaminophen), and NSAIDs to help with the fever.
Chronic bronchitis is defined as a productive cough that lasts for three months or more per year for at least two years. Most people with chronic bronchitis have chronic obstructive pulmonary disease (COPD). Tobacco smoking is the most common cause, with a number of other factors such as air pollution and genetics playing a smaller role. Treatments include quitting smoking, vaccinations, rehabilitation, and often inhaled bronchodilators and steroids. Some people may benefit from long-term oxygen therapy or lung transplantation.

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